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Written by Gayle Nobel   
Thursday, 01 November 2012 19:14

Blog-a-thon Day 30

I've come to the end of my self-imposed blog-a-thon challenge. 30 blog posts in 30 days. Except it turned out to be 30 blog posts in 32 days. Not bad. Not bad at all. I will still be blogging, just not daily. I have enjoyed hearing from so many readers. Thank you for your comments and encouragement.

It's been a hectic day and now for some quiet time. Kyle is at  a private church rock concert with Tammy. On Thursdays, he watches a rehearsal for the young folks service at Scottsdale Bible Church. They have always welcomed him with loving arms even though we are not members of the church. No one ever asked. He gets to sing as loud as he wants to the music and dance around as much as he wants too. It's just Kyle and Tammy and the band and the sound engineers in a big dark room with wild colorful lights and loud music. It's one place where Kyle can really let loose with no judgments and little restrictions. Tammy enjoys watching him enjoy. And boy, does he enjoy.

I've been thinking a lot about the topic in yoga yesterday. Masks. The masks we wear. My teacher, Sally Jo,  started off by talking about Ido's new book which she had seen me post on facebook. Ido is a nonverbal young man with autism who communicates by typing. There is so much more on the inside of Ido than what  appears on the outside. He stims, stares and moves oddly on the outisde, but on the inside he has a fully functioning mind with ideas, feelings, knowledge, awareness, and abilities.

Ido's outside is kind of like a mask. We see the mask and assume we know the person. But we don't. We just know the mask: what the person looks like on the outside. And in the case of Ido, and also my son Kyle, that outside mask differs from the inside. It differs a lot with Ido. It differs with Kyle too. I may never really know how much.

Sally Jo pointed out how we all wear masks. In yoga, she wears the yoga teacher mask but she is also a mom,  actress, singer, and sometimes raunchy performer. We think we know her. But do we?

I wear the mask of Kyle's mom. But sometimes I wear the mask of author/writer. I also wear the compassionate friend mask. And the mom to two amazing daughters mask. And supportive loving wife mask. I have a political mask too. I don't wear it very much but it is there and people are often surprised by it. That's because we tend to put people in boxes and make assumptions. I'm not saying that's a bad thing. It's a human thing. It's how we try to make sense of our world. Different masks for different situations.

But it's good to be aware that it's something we do. And that these are masks. And there are many masks that make up a person. And we can be wrong about a person based on a mask we see.  Sometimes, it's good to attempt to see beyond the layers and try to see the person behind the mask a little better. That's what I will keep trying for with Kyle. There might be a few surprises there.

Quotacious:

"I decided a few years ago that experts had made a lot of mistakes that everyone just accepted as gospel. Not to offend anyone, but how does everyone know for sure? Hard to know absolutely if the people you are dealing with are silent and can't write or gesture."

~~Ido, Vista del Mar Autism Conference

Read the full blog post on:  http://idoinautismland.blogspot.com/

See behind the mask of Ido in the video: http://www.youtube.com/watch?feature=player_embedded&v=dLAwNsT9HdA#!
Last Updated on Friday, 02 November 2012 02:46
 
Go Ido!! PDF Print E-mail
Written by Gayle Nobel   
Tuesday, 30 October 2012 20:27

Blog-a-thon Day 29

I'm looking forward to reading a new book which has just been released: Ido in Autismland: Climbing Out of Autism's Silent Prison. I have posted Ido's writing on this blog before. I must admit to an internal cringe at the word "prison" because I don't like to see autism that way.  I'm very curious to read more of Ido's perspective.

I admire Ido for how he continues to work through the obstacles he lives with. And putting his innermost thoughts and feelings into a book is fantastic. I will support his (and his mom's) endeavor by purchasing a few copies. We authors need to stick together :-). Go Ido!!

Here's some more information about the book.

Ido in Autismland opens a window into non-verbal autism through dozens of short, autobiographical essays each offering new insights into autism symptoms, effective and ineffective treatments and the inner emotional life of a severely autistic boy. In his pithy essays, author Ido Kedar, a brilliant sixteen year old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.

Ido spent the first half of his life locked internally, in silence, trapped in a remedial educational system that presumed he lacked the most basic comprehension, and unable to show the world that he understood everything. But at the age of seven, Ido was finally able to show that he had an intact mind and could understand. This led to the quest to find a system of communication that he could use despite his impaired motor control. Through the use of a letter board, and now an iPad, Ido has triumphed communicatively, enabling him to flourish in a regular high school in all general education classes.

But Ido has a larger goal. He does not want to be seen as an isolated autistic exception with miraculously advanced cognitive and communication abilities. He wants people to see that thousands of other severely autistic individuals have the same capacity, but remain trapped and locked-in, as he was, unable to show their true capacities. These individuals desperately need new theories and new methods to help them break free too. Of importance to neuro-researchers, educators, psychologists, doctors, parents, friends, family and people with autism, Ido in Autismland will change our collective understanding of severe autism.

PRAISE FOR Ido in Autismland

"There are doubtless many Idos in this world, unable to speak, yet possessing good intellectual ability and, most certainly, a rich emotional life. And yet, precisely because they cannot communicate, nonverbal individuals with autism are nearly always consigned to the junk heap of mental deficiency, branded as incapable of understanding language or even having feelings... We need to help change things for this terribly neglected group... Reading Ido's book is a good beginning." -

~~Portia Iversen, Co-founder, Cure Autism Now and the Autism Genetic Resource Exchange Gene Bank. Author of Strange Son

"Ido is a brilliant communicator. His words bring us inside the world of autism. His gift of writing enlightens, inspires, educates. Every person who loves or works with someone with autism - educator, therapist, karent, grandparent, neighbor - should read Ido in Autismland." -

~~Elaine Hall, Author of Now I See the Moon, co-author of Seven Keys to Unlock Autism. Featured in Autism: The Musical

"Ido's book touches any heart, not only because it is well written, but because it reveals a mind that has learned how to speak to the world through spelling every word on a letter board and keyboard. His book is indeed a great gift to the world. Thank you, Ido." -

~~Soma Mukhopadhyay, Executive Director of Education, HALO, Author of Understanding Autism through Rapid Prompting Method

Last Updated on Wednesday, 31 October 2012 03:41
 
Make Your Day PDF Print E-mail
Written by Gayle Nobel   
Monday, 29 October 2012 10:34

Blog-a-thon Day 29

I dropped Kyle off at Kim's this morning. After almost 16 years, they still spend a few hours together each month.  This leaves me two hours to do ??. Sometimes I go to the gym. Not feeling so well this AM so nix that. Sometimes I go to Starbucks and write, delete email, do what I gotta do on my computer.

This morning I discovered a really cool place just a few doors down from Starbucks. 24 Carrots is a vegetarian/vegan/juice bar cafe type place. I got really excited when I saw it. What can I say, it doesn't take much :-)  Free wi fi and here I am. I am sipping my Beet It! juice blend drink. Beets, cucumber, carrots, ginger. No kidding. I really do like this kind of stuff. This place has made my day and the day has just begun. Nice quiet low key atmospere. Perfect for this morning's needs. I might even be tempted indulge in one of the muffins.

I am facing a huge chalkboard wall full of curvy inspirational quotes. Perfect.

Find something small to make your day today.

Quotacious:

"In life there are many things that catch your eye, but... only a few grab your heart- PURSUE THEM!"

~~Kala Auntie

"Even if you are on the R

                                         I

                                        G

                                        H

                                        TRACK

you'll get run over if you just sit there."

~~Will Rogers

"When you want something, the universe conspires in helping you to achieve it."

~~ The Alchemist

"I haven't failed, I've just found 10,000 ways that don't work."

~~Thomas Edison

"It's fun to do the impossible."

~~Walt Disney

My blog is being rebellious and insists on rotating the picture. It's worth turning your head so you can read the quote about the pig.

 

 

 

 

 

Last Updated on Monday, 29 October 2012 17:16
 
Full Moon PDF Print E-mail
Written by Gayle Nobel   
Sunday, 28 October 2012 20:40

Blog-a-thon Day #27

I actually missed a day of blogging. I think it's because the moon will be full tomorrow.

Yesterday Kyle was in full pre-full moon way of being. Kyle feels the moon just a few days before it becomes 100% full. Some months the pull of the moon seems stronger than others. Therefore the reaction may be subtle. Other months, the pull must be more intense, because Kyle is much more intense.

This month was intense. People with autism may be more sensitive than the average person. So whereas I may have trouble falling asleep, Kyle may be stirred up for a day and a half.

When he was having anxiety cycles, they often followed the pattern of the moon. Now that he does not have cycles, he still reacts some months, but not in a severe way. Mainly, his energy level goes through the roof. He is wildly hyper and wildly noisy. He just can't get enough exercise or activity. It appears exhausting to be Kyle a few days before the moon is full. And it can be exhausting to be me too.

And then comes the crash. Kyle is so calm and quiet today, I hardly know he is here.  It must feel good for his body to settle so he can relax. I'm enjoying the relaxation too.

Here's the science behind the origins of the "LUNAtic"....

"The earth is surrounded by an ionosphere which is quite deep, actually dwarfing the earth. Between the bottom of the ionosphere and our earth's surface, where the 'sky' is, it is called the 'earth to ionosphere cavity.'

This cavity can ring like a bell at certain times, although we cannot hear it. When the moon is full, that means it is on the opposite side of the earth from the sun. 

That means the moon and the sun are both tugging at the ionosphere via gravity. This starts the 'ringing.' The frequency of this cycle is seven cycles a second -- exactly the same as the alpha waves in our brains. 

And this is the reason some people react so much to a full moon -- they are actually reacting to the unheard ringing which is literally disturbing their brain waves. Many of us simply don't react as we have the self-discipline to handle the 'different' or 'bad' days, but  the effect on some folk can be devastating.

 

There are often also reactions when a 'lighter' ringing happens at the time of the 'dark' and new moon, when the sun and moon are both tugging at the same side of our ionosphere."

Last Updated on Monday, 29 October 2012 03:53
 
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