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Mall Talk PDF Print E-mail
Written by Gayle Nobel   
Monday, 02 August 2010 14:20

Blog-a-thon- Day 7

Wow, is it day 7 already? I hope you are enjoying this blog-a-thon as much as I am. 

What do people do for exercise during the brutal heat of the Phoenix summers? Well, if you are like me, you go early, put on a hat, lots of sunscreen, and as little clothes as possible and get up on the mountain anyway. If it’s somewhat early, it’s not that bad. And all that sweating feels really great. I’ve decided the more you sweat, the more endorphins you release. You can never have too many feel good hormones circulating in your body.

Kyle, however, doesn’t buy into this and usually will not walk in the extreme heat. So, in the summer, we often head to the mall. Before the stores open, the local mall is open for walkers. Most, though not all, of the walkers are seniors.

Before the stores open, the mall actually feels somewhat peaceful, in a mall type of way. The lights are turned down, the stores are closed, quiet,  and dark, and the music is somewhat soft. Air conditioning is cranked up and there is a completely different energy to the place. There are serious speed walkers and stroll-ers and everything in between. Most voices are hushed.

Hushed until Kyle enters the mall, that is. For some reason for the first few minutes we are there, he is nearly always LOUD. Kyle may not talk, but he sure knows how to use his voice. Often his energy comes out through his voice. So if he is energetic and really needing to walk, he may really need to vocalize too.  Kyle lets the mall know “I’m here!”. Heads usually turn immediately upon our entry.

Another important detail to note is that people tend to walk in laps around the mall with the stores on their right side. This seems to be the unspoken, yet agreed upon, direction of the flow of traffic. Kyle, however, prefers to walk with the stores on this left and I choose to allow this. This way, I don’t spend a lot of time trying to redirect him to walk on a less comfortable side, and can focus on  encouraging him to walk as fast as possible burning off some of that energy.

So picture this. Here is Kyle, age 26,  at six feet plus with a somewhat awkward gait. His loud deep man’s voice is bellowing out a cacophony of sounds and he ish walking either very fast and steady into the oncoming traffic of seniors OR walking erraticly by stopping and starting frequently, spinning in place, etc. despite my efforts at guidance.  He does not reference the people he is walking toward though they desperately attempt to reference him.

We walked at the mall this past Saturday. I was very mindful of the reactions of the other people in the mall.

I’ve decided there are five types of reactions and three of them come from a place of discomfort. I try not to judge as this is certainly understandable for those who have had little experience with people who are this different. Seniors often come into this category. Back in “the day” people like Kyle did not go out in  public very often.

Picture this:

Kyle is walking either steadily or erratically and  the person we are walking toward:


1- makes an effort “not” to look at us

2- looks, or even stares at us in  disbelief, trying to figure the situation out 

3- appears frightened (This is not as frequent a reaction, but sometimes little kids or very old people act scared.) I feel sad that anyone would be afraid of Kyle because I know how gentle he is but I do understand that his size plus his behavior might scare some people.

4- smiles at me and gives me a knowing look as if to say “you guys are doing great” (I  imagine  this person might know or work with someone with special needs.)

5- smiles at me the way they would if Kyle were typical and we were just two  people connecting briefly as we walked past each other (This is my favorite. Now we are just people walking in the mall.)


It’s kind of fascinating to observe people. Obviously, I prefer reaction 4 or 5. I feel more at ease and less self conscious. But I understand where the other people are coming from too. I am also keenly aware that as they use me as a reference point so my behavior is important.

Sometimes, I conduct an experiment by initiating a look and smile to every single person we walk past. This often seems to put the majority of people at ease though there are still a few who ignore us.

Aren’t people interesting? Have you had similar experiences with your child?

Last Updated on Tuesday, 03 August 2010 14:32
 
Smile, Breathe, & Go Slowly PDF Print E-mail
Written by Gayle Nobel   
Friday, 30 July 2010 15:02

Blog-a-thon- Day 6

 

It's still the weekend... keepin it simple.

            What To Do

"Smile, Breathe, & Go Slowly"       

Leo Babauta

"Wag More, Bark Less"                    Unknown, but seen on cars all over town


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"The journey is all, the destination is beside the point."      Leo Babauta

 

 

 

 

Last Updated on Sunday, 01 August 2010 16:01
 
Fail Better PDF Print E-mail
Written by Gayle Nobel   
Friday, 30 July 2010 14:40

 Blog-a-thon- Day 5

Ahhh, it's the weekend and I'm keeping it simple. 

I have recently discovered the blog "Zenhabits" (http://zenhabits.net/elements-of-change/) and find it very inspiring. 

Here's a quote for you to munch on this weekend....

"One last note, to anyone making changes: you will fail. I don’t say that to discourage you, but to release you from the fear of failure … because if you already know it will happen, then there’s no pressure to avoid it. Failure is an inevitable part of change, and in fact it should be celebrated — without failure, we’d learn nothing. Fail, fail often, and learn. Then you’ll be better equipped for the next attempt. Find joy in every attempt, in every victory, in every failure, and the change will be a reward in itself."

Leo Babauta, Zenhabits

"Try again. Fail again. Fail better." ~Samuel Beckett

Last Updated on Saturday, 31 July 2010 10:56
 
Voice from the Autism Spectrum: Perspective on Change Part 2 PDF Print E-mail
Written by Gayle Nobel   
Friday, 30 July 2010 13:25

Blog-a-thon: Day 4

Voice from the Autism Spectrum: Perspective on Change

I hope you enjoyed the insights of Sam in  yesterday's blog post. If you are just now tuning in, Sam is a young man with Asperger’s who regularly writes for my Living with Attitude newletter. See Blog-a-thon Day 3 for more details about Sam and the first part of his writing.

Sam Speaks from the Spectrum - Change (part 2)

Then, there is the openness to change issue.  Recently, as I've been  working on growing into my own person, I haven't found the changes as challenging for me as they are for my family.  Personally, I will fall into a daily routine, going to work, coming home, etc, but find myself changing it as necessary.  As I've done more to take care of myself, to step out, to be bold, my family has become more and more unwilling to let go, leading me to have to do it behind the scenes.

One of my counselors put it best when he said that when we are born, our parents view us as babies.  Sometimes, however, our parent's view of us does not grow over time, leading to a reluctance to change the social makeup of the family.  In essence, in order to gain the experiences necessary to grow into adulthood, sometimes the parents have to be taken out of our lives for a while, until we can come back into their lives having found our own way.

I've known one person who, because of this, had to send a cease and desist email to his mother cause of the way she continued to treat him over the phone and via email once he moved out (ie- calling them just to make sure his apartment was clean even though they lived in another state).  While this might seem extreme, I've also known the exact opposite.  Sometimes I will meet adults that still have to seek their parents permission to go anywhere even though they are 27 years old, or will get told that they cannot behave right so often that they become reluctant to go out of the house by the age of 20.

Autistics need to be respected for being unique adults, and need to feel that way in order to keep healthy relationships.  This may mean difficult changes are necessary when learning to accommodate each other.  Many times this means a long and difficult fight, but a worthwhile one at that.  We are socially awkward, but that's not wrong.  It is just apples and oranges.  One cannot be made into the other.

Thank you Sam.

My thoughts...

I’ve had a lot of practice in recent years in the “letting go” department.  It can be challenging to launch our children from the nest and watch them struggle and make mistakes without coming in to rescue them, yet still remain supportive. Mistakes are opportunities to learn. Ultimately they are how we all grow.

When a child has special needs, the letting go process is even more complicated and tricky. There is a tendency to be over-protective in our desire to  keep our children safe. It’s scary for parents and the boundaries feel very muddy. Ultimately, we all really want our children with special needs to be as independent as possible. How to support  them in  getting there is the challenge. 

Your thoughts?

 

 

Last Updated on Friday, 30 July 2010 14:15
 
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