I hope you all had a wonderful Christmas (or whatever holiday you choose to celebrate). We made our own dates for Hanukkah this year since it wasn't until December 25 that our entire family was able to be together.
Yesterday was wonderful. I had the opportunity to hike Lookout Mountain and contemplate life from the top. Then I sat with Kyle out on our front wall. We both quietly basked in the Arizona sunshine for a very long time. (So THIS is why we put up with 115 degrees in the summer!) I visited my brother Philip and watched his face light up as he took the jar of pickles out of his gift bag. Our immediate family was together in the evening with the addition of Rachel's boyfriend, JB. This was his first Christmas away from his family in France. I was pleasantly surprised when Kyle came back to the dinner table not to eat, but just to sit with us. He was also peaceful and even stayed in the room the entire time while we all opened gifts. Reminds me once again, there are "moments" lurking everywhere when we are awake to them.
I wanted to share this inspiring piece I found by Jean Shaw.
Christmas, Autism and Why I Believe In Miracles
Normally I hate this time of year. The Christmas
mail generally brings with it cards from old friends and acquaintances.
Whilst I love to hear from them I often feel envious and cheated for
they make me think if what might have been if only my son hadn't
developed autism.
I know it's wrong but I'm only human.
However,
this year I seem to have got things into perspective. Instead of
yearning for what I may have missed, I appreciate what I have.
The
Season of Good Will didn't start too well. I took my son on a train
journey. He loved it. The train was full of Christmas shoppers and
commuters so we were unable to sit together. However, I managed to get
a seat directly behind him and watched as he sat staring out of the
window, a finger in one ear, reciting story lines memorised from his
vast array of videos.
The lady next to him, engrossed in her
paperback novel appeared not to notice, but a young child, three years
old apparently, did. With the innocence of youth she asked her mother
and grandmother:
"Why was he was talking to himself?"
"Why did he have his finger in his ear?"
"Why did he look out of the window all the time?"
In the
quietness of the crowded carriage her persistent little voice carried
and her carers were visibly embarrassed. They tried, as best they could
to divert her questions but were fighting a losing battle. I noticed
soon many people were glancing at my son and contemplating his somewhat
unusual behaviour.
Tears welled up in my eyes as I looked at the
little girl for it brought back memories of happier times. I remembered
how my son used to be such a chatterbox; friendly, sociable and
inquisitive. Then came autism and his world and that of all around him
changed forever.
Life's unfair.
One of the things I find
really hard is my son's inability to share his thoughts and feeling
with me. I never really know what he has done when he's not with me,
who or what he likes and dislikes and what he really wants. Usually I
have to guess and birthdays and Christmas times are very difficult.
On
the positive side it means he doesn't continually pester me with
demands for "I want" this and "I want" that but it would be nice to
know I occasionally got things right for him.
This year, I think I have and it's all because of a typing error.
My
son loves videos and he has literally hundreds. Now I know the
specialists will say that's a bad thing because it fuels his desire to
be repetitive in as much as he can watch the same films over and over
again. He doesn't though. It's true he does watch them more than once
but rotates them, and as he has so many that's no different from
watching tv every night. The thing is he learns from them and they are
not violent.
However, in the sleeve of every video there are
usually pictures of other videos in the same series, or by the same
producers, and the reason my son has so many is that he feels he has to
have them all. To him they are collector's items.
The problem is
most of them are very old, many going back to the seventies so finding
them is difficult. I use car boot sales, charity shops, word of mouth
and on-line market stores, and for the past six months have been
searching for two specific titles.
I knew my son wanted them
because he has shown me the pictures in the video boxes, has written
the titles out on a piece of paper which he thrusts in front of my eyes
every time I go on the internet, and drags me to his tv every time a
trailer comes on to mention them. He also tells me what they are, and
says, "presents Christmas Day" as he points to 25th December on the
calendar. As if that isn't evidence enough he has left two gaps in his
display where the videos will go once he gets them.
It's been a
worry because I haven't been able to locate them and was concerned how
I would explain to my autistic son that even when he tries really,
really hard to tell me what he wants I can't deliver.
Now, however, because of a typing error I have both of them.
A
local newspaper ran an article about my son and I because of a book I'd
just written. They got my name wrong. I started off as Jean Shaw but
somehow ended up as Mrs Smith.
Now I had no problems with that
but saw it as a last minute desperate attempt to locate the videos my
son so badly wanted. I contacted the reporter and asked if he would
print some sort of apology simply so that I could appeal to the readers
to look out their old stock. He said "no problem" and a few minutes
later rang me back.
He told me he's checked on one of the online
market places and both videos were there for sale. I was amazed, having
checked regularly for the past six months. I thanked him, put down the
phone and promptly ordered and paid for them. Today they arrived.
It's Christmas Eve and my son will wake up tomorrow morning a very happy boy indeed.
Who says miracles don't happen?
Also
this week son's school were performing their Christingle Service in the
local cathedral. It is a beautiful, serene building over 1000 years
old. The architecture and decorations are quite magnificent. Set in a
flat landscape the huge cathedral can be viewed from miles and is known
as The Ship Of The Fens. It gives people hope. Just thinking about its
construction makes you realise no task is too great and when you go
inside there is an amazing atmosphere of peace and tranquility.
My
son attends a school for children with special needs. Each child is
different and provides a varying degree of worry and anxiety for his or
her parents. Some children have both physical and medical disabilities,
others mental or behavioural problems. Some are confined to a wheel
chair, whilst others just wander, unable to stay still. However, every
single child is cherished and valued for who they are, and their
achievements, no matter how small, are acknowledged.
As I sat in
front of the huge Christmas Tree gazing up at the amazing stained glass
windows, and carved and painted ceiling, I listened to the carols and
recitations by the children. I watched my son perform Rudolph the Red
Nosed Reindeer dressed in his antlers, scarf and red mittens. He was so
confident and happy, it made me realise how lucky I really am.
Life, I know is about being grateful for what you have and those letters no longer bother me.
Yes, I believe in miracles.