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King for the Night PDF Print E-mail
Written by Gayle Nobel   
Tuesday, 26 March 2013 13:27

Dang, he was handsome in that red tie and dark blue suit. Dress shoes, dress socks, dress belt... he had the complete look going on. My son Kyle. He went to his first formal dance last Friday night.

When the flyer came around I didn't give it much notice. Blue and Silver Formal Dinner and Dance. It was a dance for special people who don't often get to go to things like that. Last year, the flyer went right into the trash. Kyle was in crisis mode and it was not an option. A knee jerk reaction on my part is often "not for Kyle". It's taken me years to evolve from this perspective and I am still a work in progress. Sometimes it's more a matter of not for me WITH Kyle, than not for Kyle.

The Blue and Silver formal was for people with special needs so of course it could be for Kyle. I still didn't respond right away to the flyer. Not really sure why.

The flyer came around a second time, just before the deadline to turn in $15 per person. A nudge. I decided to sign up. Kyle already had the suit. It was the one we had bought for Rachel's wedding. He never got to go to Rachel's wedding because of crisis mode. The suit hung waiting in the closet for the Blue and Silver Formal Dinner and Dance.

Friday evening....

I knew Kyle would not be able to wait that long to eat dinner and also guessed that there wouldn't be much, if anything, he could eat there. He had an early dinner at home (with no complaints on his part) which eased some potential anxiety for him and for me. Being proactive is always a good thing.

Tammy (Kyle's friend/home therapist) and I both went to share the evening with him. It was at a local hotel. Kyle had only been in two situations like this (weddings) in his entire life and both were a very long time ago.

Walking into the hotel, I felt relaxed. This was a social situation where Kyle could be himself and it was ok. We did not have to worry about his sounds or behavior. He was with his people. Maybe that sounds unpolitically correct or exclusive (vs inclusive), but there is something to it. Being at an event where people are judging him and I have expectations or hopes for him to be a certain way, perhaps quiet, is stressful. It doesn't mean we don't or shouldn't do it. It's good for Kyle to learn how to blend and control the volume of his voice and energy in his body. It both challenges him and expands his world. But it is also hard work for him. And hard work for us as well. Friday night he could be Kyle, enjoy himself in his way, and it was all good. Truly all good.

Music, formal tables, dance floor, buffet, decorations, colored flashing lights. It was a lot to process. Kyle was a little apprehensive going in to this new situation. His friend Tiffany was already there. She told me she came so that he would feel less anxious. She's a sweet girl in his program who has taken a liking to him. They are buddies. Having a peer for a buddy is a first for Kyle.

Just sitting at a formal table with all the glass and silverware was a challenge for Kyle. It was hard for him to stay seated with music playing so he was on the dance floor before anyone else. And it was ok. Nice. Music speaks to Kyle's soul. He feels it and has to move. It was a relaxed atmosphere and he could get up when he wanted.

After dinner, the festivities really began. The DJ's pumped up the volume and people hit the dance floor. Sometimes it was too crowded for Kyle and he danced his way around the tables. Angelica (his 1:1 assistant from the program) was there too. For some of the time, I sat back and watched Kyle out on the floor with Angelica and Tiffany dancing amongst the crowd. The music was cranked up and Kyle was grooving to the beat.

Softening my focus, I became aware of the group... adults with all types of special needs, support people, and even administrators from Aires, the company that sponsored the dance. Everyone was dancing, smiling, having fun on a Friday night. Even the administrators were interacting with,  supporting and dancing with individuals. Beautiful moments. Something that might not be a big deal for many people, was huge that evening. The staff made an extra effort to draw people on to the dance floor. The scene was truly heartwarming.

Although nervous at times, overall, Kyle seemed to be enjoying himself. He is not able to express his feelings fully. Despite my expertise in reading him and making good guesses, I don't really know specifically what was going on for him. I believe he was taking it all in though his exact level of awareness is unknown. It is definitely more than it appears.

Toward the end of the evening, there was a crowning ceremony. Guys and gals made separate lines and each got a round of applause. The male and female with the loudest applause won the crown. Maybe it was the way Kyle owned that suit, or his smooth moves on the floor, or the culmination of a fantastic year of growth, but the applause for Kyle was overwhelming and he took the crown. Kyle was named King of the Blue and Silver Formal. Tiffany earned the Queen's crown and she beamed. Kyle wanted no part of wearing that new and unfamiliar crown on his head but for just a few moments, he was a star nevertheless.

This was an evening to remember. I'm grateful to Aires, the company that runs Kyle's day program, for their fundraising efforts to make this formal dance possible. What a gift to the adults they serve all year.

And I'm grateful for Kyle's journey this past year.... all the moments on his life's path that led up to this special evening. King for the Night.

Last Updated on Thursday, 28 March 2013 20:24
 
Music Video PDF Print E-mail
Written by Gayle Nobel   
Wednesday, 20 March 2013 18:50

So proud of my daughter Leah. She just released her music video RIDE THE BUTTERFLY (OFFICIAL MUSIC VIDEO). Check it out and pass it on.

 

 
An Ideal World PDF Print E-mail
Written by Gayle Nobel   
Tuesday, 19 March 2013 10:31

I am more than halfway into my March 31 in 31 Meditation Challenge.

I'm hoping this month will set the foundation for a mediation habit.  I have had an on and off love affair with meditation since my dad passed away in 1995. Meditation was  a comfort to me during that difficult time.

Some months I will be doing a challenge just for the sake of doing a challenge, not necessarily to create a new habit. But with the meditation challenge, I am hoping to use it as a kickstart to create a habit.

The best way to form a habit is to start small. For the first week and a half or so I was mediating 2-4 minutes a day. Two minutes is enough to create a shift, it really is. But more importantly, it is enough to keep me in the habit groove. Repetition, no matter how large or small, is what it takes. It's that "just show up" thing again.

Another good way to create a habit is to decide on a trigger. For instance, brushing my teeth in the morning could be a trigger to get my buns over to the meditation cushion. This would help me remember to show up and by linking a second habit to a first, I have a better chance at habit creation success. The layered habit approach.

In an ideal world this would be an awesome thing for me to do. I prefer to meditate in the morning. It makes me calmer and more patient with Kyle from the get go. I really do feel a difference in myself though it's hard to say exactly what it is. More like a feeling, an attitude. No doubt, meditation starts my day off in a solid, positive way.

HOWEVER, I don't live in an ideal world. Often, Kyle needs me right away in the morning. Sometimes even before I brush my teeth.. no kidding! Perhaps some of you parents can relate.

In my real world, it often happens  that I am not able to meditate first thing in the morning.  Therefore, I have not been able to use the trigger approach to forming this habit. However, my intention has been powerful enough so that I search for opportunities later in the day. It has been random but I've found that has added to the challenge of it, and to the fun. One of my favorite spots has been on the mountaintop behind my house. Exercise and meditation, spiritual vitamins that make my soul happy. When administered together, they are a recipe for a really great endorphin boost.

I've heard from readers doing their own challenges. Month 3 and life has thrown a bunch of curveballs to one of my friends. She has gotten way off track losing focus with her challenge. It would be easy to give up entirely. Her solution has been to start fresh in April. Regroup and start over. I think that's an ideal approach to have.

This is life. We start things with gusto, maybe even with a high level of commitment. Life steps in for a little intervention, some altered plans. We falter... how could we not? The key is to keep redirecting ourselves to the path, whatever we have decided that is. To get back on track as soon as possible and begin moving forward.

There is no ideal world. Today I get to "just sit". Not sure exactly when, but sometime today, in MY real world, I'm going to make it happen.

 

PS

Recently, I wrote an article called Thinking Inside the Box for the new Autism OZ digital magazine. It's about Kyle's volunteer work making toiletry shoeboxes for the homeless. I have written about this project in previous blogs. We are always in need of donations :-)

In case you haven't caught it, here's the video that accompanied the article:

http://youtu.be/vIXKw-NsFZk

Autism Oz iMagazine is a digital magazine designed to inform, inspire, support and entertain all those across the world touched by autism. It is a fantastic magazine with an international flare.

Subscription is available on either a magazine by magazine basis for $5.49 OR 12 month/12 issues for $43.99 which comes out to just over $3.60 an issue. PDF versions are available if you don't have an IPad.

Last Updated on Tuesday, 19 March 2013 18:00
 
March 31 in 31 PDF Print E-mail
Written by Gayle Nobel   
Monday, 04 March 2013 13:54

It is March 4 already. Yikes! February flew by. March is a longer month. More days to complete a challenge. I am still on a monthly challenge mission. 28 days of acts of giving/kindness was awesome last month. I learned a lot about what happens when you set an intention. Creativity coupled with heightened awareness kicked in to help me fulfill my challenge in February. What a great feeling!

In fact so far I am really loving the challenges in a "how in the world am I going to do this every day this month" kind of way. Trying not to take myself too seriously and have fun with the process. Kinda like life.

I  find it is hard to stop the momentum of a challenge at the end of the month when moving on to a new one. That's because one month is long enough to form a habit. Of course, there is nothing that says I have to stop completely and I hope to enjoy the perks of some newly formed habits.  Today when I let a woman go ahead of me in the grocery line she provided way too much information about her husband's illness at home and how she had to hurry back with the particular items she was purchasing. An act of kindness run amok.

I have been away for the first 3 days of March but started my challenge nevertheless which is....

31 days of MEDITATION in 31 days of March. "Just Sit" is how I like to think of it (named by my friend Sandi). For how long? Doesn't really matter but at least 2 minutes. And yes, 2 minutes counts.

Where? Again doesn't matter. I had to get creative while in Austin visiting my daughter Leah. This means I discovered that yes, you can meditate on an airplane. No one has to know that you are not actually sleeping. :-).

When? Preferably in the morning. Get er done is a good attitude to have when doing these challenges but it can be any time that works.

Some might think meditation is a bit whoo whoo, out there, new agey, weird, or mysterious. Personally, I have had an on again, off again relationship with it since 1995 when I was dealing with the death of my father. When I first started, my husband used to come home from work and say he could tell by my face that I had mediated that morning. He also seemed to know when I didn't. Hmmm, perhaps that's enough said.

So what is it? Basically meditation is about practicing mindfulness. Mindfulness seems to be the opposite of where we spend much of our mental attention. It is a great antidote for our life of multitasking and constant busy-ness.

Leo Babuata of Zen Habits shares some simple information about meditation:

Why practice mindfulness through meditation? Actually, there are lots of great reasons. Here are a few:

• It relieves stress and helps you to relax.

• When you practice mindfulness, you can carry it out to everyday life.

• Mindfulness helps you to savor life, change habits, live simply and slowly, be present in everything you do.

• Meditation has been shown to have mental benefits, such as improved focus, happiness, memory, self-control, academic performance and more.

• Some research on meditation has indicated that it may have other health benefits, including improved metabolism, heart rate, respiration, blood pressure and more.

Those are just the highlights. Actually, some of the best benefits of meditation are hard to define — you begin to understand yourself better, for example, and form a self-awareness level you've never had before.

Most simply, sitting for just a few minutes of meditation is an oasis of calm and relaxation that we rarely find in our lives these days. And that, in itself, is enough.

This pretty much says it all. March challenge:  31 in 31.... "Just Sit".

Join me. Anyone?

Last Updated on Monday, 04 March 2013 21:05
 
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